#duet with @eviemeg🍉 another debbie attack. now in my left leg & both feet, neck, shoulder, left arm & hand/fingers. waiting for muscle relaxers to kick in 💗 #dystonia #dystoniaawareness #dystoniawarrior #fyp
cheers dad🥲 autoimmune diseases suck. had my first proper tic attack in months, (possibly like a year!!) dystonia attacks and dystonic tremors are back full swing. just being around infection can make me very symptomatic, even if i don’t get the cold myself. my immune system is shit😅 #awareness #fyp #autoimmunedisease #autoimmuneencephalitis #dystoniawarrior #ticattack #tics
my grandad is an angel on earth🤎 he’s an emotional man, they haven’t seen me walk normally in almost 2 years so he was crying happy tears, even tho his little wobbly voice broke me a bit. i was so excited to show them and im so glad i filmed it. i’ll treasure this video forever🤎 #grandparents #fyp #hopecore #positive #foryou #encephalitis #lymedisease #bartonella #autoimmuneencephalitis #grandma #grandad
sharing for dystonia awareness🤍 dystonia is a neurological movement disorder which causes involuntary muscle contractions, often putting the person in unnatural positions & postures. it’s a very painful and debilitating condition. my dystonia has autoimmune causes, and i’ve had dystonia for 6 years now, but it never used to be like this. this was the 18th of february🤍 #dystonia #awareness #fyp #dystoniawarrior #lymedisease #autoimmuneencephalitis #autoimmunedisease #bartonella #foryou #dystoniaawareness
happy friday🩷 staying positive despite this attack which is still on going. have a good day 💓🫶🏻 #dystonia #awareness #dystoniawarrior #autoimmunedisease #dystoniaawareness #grwm #fyp
thank you universe & treatment😭💗🫶🏻on the 12th of May 2023, after feeling ‘dead’ and ‘jelly’ for a few days, my legs completely gave out in a train station, i fell to the floor and couldn’t get up. and my legs never got better. the past couple months i have seen slow improvement, and it’s built up to where i am now😭 my legs feel like mine again, they feel light, like bricks that were tied round my ankles have now been taken off. it’s not perfect, im very early days and will be slowly building up stamina, reducing foot pain, slowly increasing walking time, a bit more physio…..but finally some hope😭this is the best they’ve felt since that day in May ‘23. i’m nervous to share incase it doesn’t stay this way but im just SO happy🩷 today i walked my dog teddy myself (holding the lead) for the first time in 21 months😭it’s been on my goal list🩷🫶🏻 #fyp #positive #hopecore #lymedisease #bartonella #encephalitis #AE #autoimmuneencephalitis #lymediseaseawareness #warrior #foryou
a glee performance is a dance i can get behind🙈 haven’t seen anyone do a wheelchair version yet!🩷my 5th wheelchair dance🫶🏻 #glee #fyp #wheelchairdance #dance #trend #gleek #foryou #wheelchair
what i wouldn’t do to go back❤️🩹 #fyp #hugtrend #autoimmuneencephalitis #lymedisease #bartonella #braininflammation #awareness #warrior #chronicillness
why do i cause chaos everywhere i go😫🤣 another day, another tic incident…. couldn’t believe i got it on video🤣 #tourettes #tics #fyp #foryou #tourettesawareness #tourettessyndrome
dancin out the dystonia🕺🏻✨i’ve had a horrible day of pain and ongoing contractions. but tonight i felt like dancing it out, and although it hurt, it did feel good🙈💜 dance it out dance it out & stay positive🕺🏻🫶🏻 #fyp #dance #danceitout #dystoniawarrior #cervicaldystonia #positivevibes #MentalHealth #autoimmunedisease
this sound is all over my fyp, this movie is 👌🏻👌🏻 had to do a sign language version🙈 #signlanguage #BSL #britishsignlanguage #foryou #fyp #riomovie #trend
my cruelty free makeup routine💗(with a slight blip) filmed the 16th. this caught me really off guard (hence the ‘what the f-’🤣) and i had another attack a few hours before this was filmed, but i love how the makeup turned out💗🌞 #crueltyfreemakeup #veganmakeup #crueltyfreebeauty #dystonia #dystoniaawareness #cervicaldystonia #MakeupRoutine #dystoniawarrior #positivity #fyp @W7Makeup@Makeup Revolution @MUA Cosmetics @nyxcosmetics_uk
with another trend going round, just remember sign language isn’t a trend it’s a language & way of communication. if you’re learning be sure to learn respectfully, from the deaf community, learn about deaf culture, the importance of facial expressions and interpretations when signing❤️🩹🫶🏻 #BSL #signlanguage #britishsignlanguage #fyp #dystonia #cervicaldystonia #foryou